12:00 and surgery completed and more complicated than we hoped. Unfortunately plan #3 was the only option as her complex heart defects made for a difficult surgery that she was not tolerating well. They were unable to get everything connected and she now has the upper pouch of her esophagus coming out from her neck into a spit fistula where her secretions will drain and the TE fistula has been permanently disconnected. She’ll have a rough recovery road ahead of her and yet another surgery to add to her list when in a year or so they can bring her stomach up to create an esophagus. It’s a similar procedure for esophageal cancer patients. She’ll be feeding by her stomach tube and will have to wait even longer before being able to orally eat. On the plus side (which I’m really having to dig for right now as this wasn’t the outcome we were hoping for), she can have all the ice-cream she wants since it won’t travel to her hips.
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