Waiting for the Other Shoe to Drop
Upon entering week three of Lydia’s Boston adventure, we’re doing our best to maximize our time with each kid individually. Amanda remains in Kansas City with the 2/3rds, attempting to live life as normal, and I’ve returned to Beantown to spend the week with Lydia, which has been a real treat. In KC, we were only able to steal a few hours here and there with her, due to the needs of Wyatt and Ava, and the regulations regarding siblings in the NICU. We’ve gotten to really know how sweet, patient and courageous our little girl is.
So, back to the title of this post. We’ve been scheduled and rescheduled for this procedure now for the third time. It’s understandable; she’s quite stable and healthy, and other cases are just more emergent than hers.
While her care here has been nothing less than stellar, we’ve been subjected to the emotional run-up to surgery twice–just without the relief of getting the job done. So here we sit, halfway across the country from one another, making the mental, emotional, and spiritual preparations to deal with yet another surgery. For anyone keeping tabs, this will be five procedures in five months.
And while it has been such a joy to spend so much time getting to know her so well, it also makes the thought of seeing her go through this long series of procedures even more emotionally draining. But, we face this challenge as we have all others: with determination, confidence, and faith that she is in the right hands, in the right place at the right time.
In the morning, we’ll bid our sweet Lydia goodnight, and the next time we’ll see her bright-eyed smile, it will be on a renewed, more complete little body, one step closer to coming home.
And that’s why we’re here.
Boston’s newest Sox fan.
Lydia spends some time primping in the mirror (good thing we have 3 bathrooms at home…we’ll need them all for the teenage years).
The view of the Longwood area of Boston from Lydia’s window.
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