Anesthesiologist just came down for an update and as he put it “wanted to plant the seed for a possible future tracheostomy” due to her really difficult airway and worsening lung conditions. crappy. crap. crap. That’s what I think about that. But she still has numerous procedures and they feel she is going to be really difficult to wean from the ventilator so this would possibly give her a better recovery period and ensure she has an easy airway should she need some assistance. Ugh. Guess we’ll figure that one out when we get to it.
Why the lung issues?
1. She was a preemie. Not a micropreemie, but immature lungs all the same.
2. She has a moderate degree of tracheomalacia which is a softening of the trachea that makes the normally firm windpipe soft and somewhat floppy.
3. She has a severe congenital heart defect which they believe is now possibly causing an over circulation of blood to her lungs making her more difficult to ventilate.
4. She has the “pouch” of esophagus tissue from where her TEF was cut away that holds fluid that will spill into her lungs. They’re not sure if this has grown since the surgery to cut away her TEF or if when they cut away her TEF, they weren’t able to get right by the trachea.
Anyway, I’m trying to start to digest this whole tracheostomy business. Not happy about it, but if it’s in her best interest, then that’s what we’ll do.
Deuteronomy 31:6 – “Be strong and courageous, do not be afraid or tremble at them, for the LORD your God is the one who goes with you. He will not fail you or forsake you.” I stole this quote from http://www.babycamden.info
Camden is another strong EA/TEF baby who has quite the story of his own and is handsome to boot. He’s also one of Lydia’s possible future boyfriends that we’re considering arranging the dowry for 🙂
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