a new day
We sat down to today with Lydia’s cardiologist and her cardiac surgeon to have the most unpleasant discussion of them all. Basically her pulmonary artery pressures are too high from all the insults her lungs have had with prematurity, surgeries and infections to make her a candidate for the Fontan surgery she would need down the road to survive. They may improve over the next several months if we can continue the slow and tedious wean of her ventilator. Things may change for the better, but at the moment, they are not terribly optimistic about her long term outlook. We are hoping she will be stable enough to make the medical flight back to Children’s Mercy PICU so we can finally have her close to us again and let her meet the people that desperately want her home and healthy. They don’t feel she’s a good ECMO candidate either so if she takes another turn for the worse, that isn’t likely an option. She has made great improvements before and we long to see her smiling face and balloon kicking dancing legs again.
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