Poetry seems to be especially empowering at this moment. Here is one shared from a friend who also has a special needs child.
“God saw you getting tired, a cure not meant to be.
So, He put his arms around you and whispered “come with me”.
With tearful eyes we watched you and saw you fade away,
although we loved you dearly, we could not make you stay.
A golden heart stopped beating, your tender hands at rest.
God took you home to prove to us he only takes the best.”
This is the poem that was in Lydia’s program. I had first read it when I learned of her heart diagnosis.
1/2 OF AN ANGEL’S HEART
It’s a beautiful day up in Heaven. Jesus is rounding up his tiniest
angels, to go live on earth, and be born.
One of the sweetest angels says to Jesus “I dont want to leave, I
like it here, and I will miss you.” He reassures the scared little
angel that everything will be okay, and that she is just going for a
She is still not swayed on this idea. So Jesus, kneels down, and
says “How about if you leave half of your heart here with me and
take the other half with you, will that be okay?” The angel smiles
and says “I guess that will work”.
But the little angel is still a little scared. She askes “Will I be
okay with only half of my heart?” Jesus replies, “Of course you
will, I have other angels there that will help out, and you will be
Then Jesus gives the angel more details about his plan, he
says “When you are born, your Mommy will be scared, so you have to
be strong, and when you feel weak just remember that I have the
other half of your heart.” “Enjoy your time with your family, play
and laugh everyday.”
“And when its time to come back to Heaven, I will make your heart
whole again.” “Always remember, that you are not broken, just torn
between two loves.”